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THANK YOU!
WOW! 😮 We were blown away by how many of you took part in our sock campaign for Rare Disease Day 2024! It was lovely to see so many of you that took part last year get your stripes out again for another year - but also to see so many new faces! 

We are so proud of you all for making the day so special 

Approximately 3.5 million people in the UK live with a rare condition. People impacted by rare conditions face similar challenges because of a lack of awareness about rare disease. They commonly report that they want to feel listened to and believed by healthcare professionals and involved in their care and you really helped by raising awareness and showing that YOU care.

Thank you! 

You can view our Rare Disease Gallery 2024 now.
View the gallery
The new season of the podcast is out! For the first episode of the new season, Lucy spoke to Baroness Nicola Blackwood! Find out what she had to say about Ehlers-Danlos, her life in politics and patient care. 🎧

Listen now!
Listen now
Zainab Alani one of our patient/medical student ambassadors has organised the RAREAware Glasgow annual conference!

It's having its co defence on Saturday 16th March on the University of Glasgow campus. To celebrate the rarity of this year’s rare disease day, the conference will be free!

The event is open to everyone and anyone who is interested or wants to know more about rare diseases. 
Register now

Join us to celebrate the end of another highly successful Student Voice Prize.

This year’s competition saw more entries than ever before from 30 different universities across 18 countries. We are so grateful to the students and patient groups who contributed to this success.

This event is an opportunity for us to share these achievements and showcase some inspiring case studies. We will also highlight opportunities for students to continue their involvement in rare diseases going forward.

We hope that for many students this competition has marked the beginning of a continued interest in rare diseases that could span their career and make a real difference to the lives of people living with rare conditions.

 

Who is this event for?
 
  • Medical and science students who have entered The Student Voice Prize in the past or would be interested to in the future
  • Medical and science students interested in learning more about rare conditions and getting involved in the community
  • Rare disease patient group leaders interested in SVP, even if you haven’t been involved in the past

 

During this event you will:
 
  • Hear stories from rare disease patients and advocates
  • Connect with students and the rare disease community
  • Hear from 2023 competition winners
  • Learn about opportunities to get involved with rare diseases going forward

Spaces are free but limited!
Claim your ticket
Copyright © 2024 Medics4RareDiseases Ltd, All rights reserved.


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