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THANK YOU!
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WOW! 😮 We were blown away by how many of you took part in our sock campaign for Rare Disease Day 2024! It was lovely to see so many of you that took part last year get your stripes out again for another year - but also to see so many new faces!
We are so proud of you all for making the day so special
Approximately 3.5 million people in the UK live with a rare condition. People impacted by rare conditions face similar challenges because of a lack of awareness about rare disease. They commonly report that they want to feel listened to and believed by healthcare professionals and involved in their care and you really helped by raising awareness and showing that YOU care.
Thank you!
You can view our Rare Disease Gallery 2024 now.
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The new season of the podcast is out! For the first episode of the new season, Lucy spoke to Baroness Nicola Blackwood! Find out what she had to say about Ehlers-Danlos, her life in politics and patient care. 🎧
Listen now!
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Zainab Alani one of our patient/medical student ambassadors has organised the RAREAware Glasgow annual conference!
It's having its co defence on Saturday 16th March on the University of Glasgow campus. To celebrate the rarity of this year’s rare disease day, the conference will be free!
The event is open to everyone and anyone who is interested or wants to know more about rare diseases.
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